Welcome to the Maffucci Syndrome and Ollier's Disease Website 

This website has been designed to share information and experiences of Maffucci Syndrome and Ollier's Disease, from those affected and those with knowledge of them and to support and provide guidance on these rare conditions. 

The success of this website will be down to the quantity and quality of the information provided by those who are willing to contribute and has been created to pull together a range of materials that will support those previously and newly diagnosed.

Please register and login, this will then allow you to gain full access to the website.

Contact us to start sharing your knowledge and experiences.



Latest News

Rare Disease Day- Friday 28th February 2014.

For more information visit the Raising Awareness section.


Our first Newsletter has been emailed out to all registered members to the website,

to receive please register and this will be sent onto you.



We are pleased to announce the Next Meeting of maffucciandolliers.co.uk  will be held in London, England, UK on

Saturday 18th October 2014 (Date and Agenda TBC)




How does the website work?

The website has various pages all storing information on Maffucci Syndrome and Ollier's Disease in a way that makes it easier to finding the answers to your questions.

To gain full access to the website please log in, on the right hand side of this page. You can choose which information you wish to share and contribute. However, with Maffucci Syndrome and Ollier's Disease being such rare conditions, it is our own stories, experiences and knowledge that by sharing and coming together we can educate and support one another.

The website will be evolving, developing and updating all the time, keep in regular contact, follow us on twitter and like our Facebook page to keep updated.

Check out.....

Share Your Story - Members sharing their stories relating to Maffucci Syndrome and Ollier's Disease. Our own stories are so important to helping one another. Please email This email address is being protected from spambots. You need JavaScript enabled to view it. to share yours.

Research - to find out the latest and past research into Maffucci Syndrome and Ollier's Disease.

Raising Awareness - Look at what fundraising and media coverage has taken place into Maffucci Syndrome and Ollier's Disease.



Why a snowflake for maffucciandolliers.co.uk?

The snowflake represents the uniqueness and rarity of Maffucci Syndrome and Ollier's Disease.

Snowflakes vary in size and shape and they represent individuality as although similar no two are alike.



maffucciandolliers.co.uk Website Information

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                 This website has been set up to provide information and guidance, please ensure you

gain professional medical advice in relation to your condition.


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