Welcome to the Maffucci Syndrome and Ollier's Disease Website
This website has been designed to share information and experiences of Maffucci Syndrome and Ollier's Disease, from those affected and those with knowledge of them and to support and provide guidance on these rare conditions.
The success of this website will be down to the quantity and quality of the information provided by those who are willing to contribute and has been created to pull together a range of materials that will support those previously and newly diagnosed.
Please register and login, this will then allow you to gain full access to the website.
Contact us to start sharing your knowledge and experiences.
* Video's From the 2014 Conference have been added to the Annual Conference Page . *
* The Red Robin Trust is launched 2014!! A trust supporting Maffucci Syndrome and Ollier's Disease Worldwide *
*WEBSITE UPDATE *
This website will be updated later this year - please bear with us during this time.
* COMING SOON *
We are pleased to announce the Maffucci & Ollier's Association Conference was held in London, England, UK on
Saturday 18th October 2014
Presentations and Footage will be uploaded to our website shortly
If you are interested in our 2015 Conference which we are organising
How does the website work?
The website has various pages all storing information on Maffucci Syndrome and Ollier's Disease in a way that makes it easier to finding the answers to your questions.
To gain full access to the website please log in, on the right hand side of this page. You can choose which information you wish to share and contribute. However, with Maffucci Syndrome and Ollier's Disease being such rare conditions, it is our own stories, experiences and knowledge that by sharing and coming together we can educate and support one another.
The website will be evolving, developing and updating all the time, keep in regular contact, follow us on twitter and like our Facebook page to keep updated.
Research - to find out the latest and past research into Maffucci Syndrome and Ollier's Disease.
Raising Awareness - Look at what fundraising and media coverage has taken place into Maffucci Syndrome and Ollier's Disease.
Why a snowflake for maffucciandolliers.co.uk?
The snowflake represents the uniqueness and rarity of Maffucci Syndrome and Ollier's Disease.
Snowflakes vary in size and shape and they represent individuality as although similar no two are alike.
maffucciandolliers.co.uk Website Information
If you have registered but not received the login email please check your junk mail.
This website has been set up to provide information and guidance, please ensure you
gain professional medical advice in relation to your condition.