Media 

If you know of any media coverage not listed already please use the online mail form on the 'Contact us' page to let us know so we can keep this page updated.

 

February 2014 - Worcester News, England,UK

Kidderminster mother calls for Rare Disease Day support

http://www.worcesternews.co.uk/news/regional/worcestershire/11036924.Kidderminster_mother_calls_for_Rare_Disease_Day_support/

 

July 2013 - Leicester, England, UK

The little boy with a place in medical history

http%3A%2F%2Fwww.leicestermercury.co.uk%2Fsearch%2Fsearch.html%3FsearchPhrase%3Dmaffucci%26where&h=8AQE2J2m9

 

May 2013 - Somerset, England, UK

Seven year old with rare illness in charity bid

http://www.thewestonmercury.co.uk/news/seven_year_old_with_rare_illness_in_charity_bid_1_2188975

http://www.thewestonmercury.co.uk/news/ill_schoolgirl_helps_fight_against_her_condition_1_2218358#cxrecs_s