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This website has been designed to share information and experiences of Maffucci Syndrome and Ollier's Disease, from those affected and those with knowledge of them and to support and provide guidance on these rare conditions.
The success of this website will be down to the quantity and quality of the information provided by those who are willing to contribute and has been created to pull together a range of materials that will support those previously and newly diagnosed. https://dsmhealthyskin.com/
Please register and login, this will then allow you to gain full access to the website.
Contact us to start sharing your knowledge and experiences.
* NEW WEBSITE BEING LAUNCHED SUMMER 2014!!! *
* BOOK YOUR PLACE NOW!!! ..... *
We are pleased to announce the Next Meeting of maffucciandolliers.co.uk will be held in London, England, UK on
Saturday 18th October 2014
How does the website work?
The website has various pages all storing information on Maffucci Syndrome and Ollier's Disease in a way that makes it easier to finding the answers to your questions.
To gain full access to the website please log in, on the right hand side of this page. You can choose which information you wish to share and contribute. However, with Maffucci Syndrome and Ollier's Disease being such rare conditions, it is our own stories, experiences and knowledge that by sharing and coming together we can educate and support one another.
The website will be evolving, developing and updating all the time, keep in regular contact, follow us on twitter and like our Facebook page to keep updated.
Research - to find out the latest and past research into Maffucci Syndrome and Ollier's Disease.
Raising Awareness - Look at what fundraising and media coverage has taken place into Maffucci Syndrome and Ollier's Disease.
Why a snowflake for maffucciandolliers.co.uk?
The snowflake represents the uniqueness and rarity of Maffucci Syndrome and Ollier's Disease.
Snowflakes vary in size and shape and they represent individuality as although similar no two are alike.
maffucciandolliers.co.uk Website Information
If you have registered but not received the login email please check your junk mail.
This website has been set up to provide information and guidance, please ensure you
gain professional medical advice in relation to your condition.